Respecting Choices

COVID-19 Resources

Respecting Choices COVID-19 tools and resources available at the bottom of this page are currently free and open to all, and include:

Resources to have Planning Conversations in COVID-19
Tools to support specific treatment decisions
Resources for individuals

The fear and uncertainty related to the spread of COVID-19 is real, and it is understandable. We are all feeling it, both personally and professionally. We are being called upon to support each other in new and different ways, in all domains of life.

Individuals and their families who are at highest risk for complications and death from this infection are feeling especially vulnerable. No one can eliminate the uncertainty about whether they will get sick, or how sick they will become. But there is a way to limit the uncertainty, through proactively asking about the type of care they want, should they become severely ill. Knowing this information also limits the uncertainty for their loved ones and for the clinical teams who can confidently create a plan that aligns with what matters most to each individual.

One clinician shared this experience with us: “Our Division of Geriatrics/Home-Based Primary Care has been working with vulnerable frail elders and their agents/families to have unbiased, proactive care planning conversations regarding their goals should they contract Covid-19. Most of these interactions are via phone. We have received nothing but RELIEF by asking these questions ahead of time about what they would want and preparing agents for a possible decision-making role.”

Respecting Choices is receiving many similar stories describing opportunities to provide empathetic care to those that are worried and thinking about this. When given a voice, individuals are reassured. Some may express a goal to avoid unwanted care. This will create a challenge for healthcare delivery because once desired preferences are identified, systems must be in place to honor them. For example, if individuals want to avoid hospitalization, resources need to be in place to give the aggressive symptom management that may be needed.

Health systems who have not yet seen an influx of people with COVID-19 have a window of opportunity to assist with these proactive care planning conversations.

We recognize these types of conversations are new and unfamiliar for many clinicians, and this tool kit is intended to support you. Building on our 20 years of experience and research, Respecting Choices has adapted these tools for use as stand-alone materials, without additional online or in-person educational requirements, and all are specific to COVID-19.

We are offering these materials free to use during this period of crisis. Copy them, email them, spread them around. And please give us your feedback via email or by joining our virtual open office hours (click here to see dates and hours).

If you want more educational content, please click here or contact Respecting Choices at info@respectingchoices.org

Thank you for all that you do. Stay safe and healthy!

The Respecting Choices® COVID-19 tools and resources below will support these important conversations. They are currently free and open to all based on the Creative Common License. This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
Creative Commons License

 

Resources for having Proactive Planning Conversations in the context of COVID-19.

Name Description For Use By End-recipient
Proactive Care Planning for COVID-19 Conversation guide to print and use when having an ACP conversation with a patient. Any clinician having ACP Conversations Patient
Proactive Care Planning with HC Agents for COVID-19 Conversation guide to print and use when having an ACP conversation with the healthcare agent of a non-decisional patient. Any clinician having ACP Conversations Healthcare Agent
Medical Priorities and Treatment Options 1-page document  patient/agent to read along during the conversation. For Use in Conversation Only Any clinician having ACP Conversations Patient or Healthcare Agent
Scheduling Proactive Care Planning for COVID-19 Abbreviated 2-page document for use by any team members to call and schedule time a for clinician to have conversation with an individual. Any staff proactively contacting individuals to schedule conversations Patient
Scheduling HC Agents to Proactive Care Planning for COVID-19 Abbreviated 2-page document for use by any team member to call and schedule time for clinician to have conversation with the Healthcare Agent of individual Any member of teams who are proactively contacting Healthcare Agent of high-risk individuals to have ACP conversations Healthcare Agent
Recorded Webinar: How to have a proactive care planning conversation. 26-minute video walks through the use of the Proactive Care Planning for COVID-19 conversation guide and tools in this section. Clinicians who will facilitate ACP conversations Clinicians

Tools to support specific treatment decisions for individuals with serious illness.

Name Description For Use By End-recipient
Decision Aid: CPR Tool to help patients with serious illness clarify their preferences for CPR. Only for patient use in conversation with clinician Clinicians having ACP conversations Patient or Healthcare Agent
Decision Aid: Help with Breathing Tool to help patients with serious illness clarify their preferences for Ventilators and/or BiPap and/or comfort focused breathing support. Only for patient use in conversation with clinician Clinicians having ACP conversations Patient or Healthcare Agent
User Guide for Decision Aids 1-page document describes how to use the decision aids in conversation with patients/healthcare agents Clinicians who will use decision aids during ACP conversations Clinicians
Recorded webinar: How to use Decision Aids 18-minute video describes and demonstrates use of the CPR decision aid in conversation with patient Clinicians who will use decision aids during ACP conversations Clinicians

ACP Materials to Share with Patients and Healthcare Agents

Name Description For Use By End-recipient
Proactive Care Planning for COVID-19 for Individuals The importance of knowing treatment preferences before a medical crisis Individuals and their agents/loved ones Individuals and their families
Proactive Care Planning for COVID-19 for Healthcare Agents The importance of knowing treatment preferences before a medical crisis Healthcare Agent of individuals Healthcare Agent of individuals

Additional COVID-19 Resources From Our Collaborators:

American Academy of Hospice and Palliative Medicine (AAHPM)
Cambia Health Foundation
Center for Disease Control and Prevention (CDC)
Center to Advance Palliative Care (CAPC)
Home Centered Care Institute (HCCI)
Indiana University Center for Aging Research
National Coalition for Hospice and Palliative Care
National Hospice and Palliative Care Organization (NHPCO)
National POLST
PREPARE For Your Care
Social Work Hospice & Palliative Care Network
The John A. Hartford Foundation
VitalTalk
WiserCare Quick Start Support

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