Acceptability of Family-Centered Advanced Care Planning for Adolescents With HIV
Dallas, R. H., Kimmel, A., Wilkins, M.L., et al. (2016).Acceptability of family-centered advanced care planning for adolescents with HIV. Pediatrics, 138(6):e20. http://pediatrics.aappublications.org/content/early/2016/10/30/peds.2016-1854.
Small pilot study supporting the appropriateness of engaging adolescents with chronic or life-limiting illnesses in pediatric advance care planning (pACP). A randomized controlled trial was conducted at 6 US urban hospitals where adolescent/family member dyads were randomized to receive the 3-session FAmily-CEntered Advance Care Planning (FACE) pACP intervention or active comparator. Enrollees consisted of 53% of eligible participants with 97 adolescent/family dyads. Satisfaction Questionnaires were administered at each session. Conclusion: FACE enabled worthwhile conversations, while simultaneously eliciting.
RC Program:
